tag:blogger.com,1999:blog-5241268467436874661.post7381450035188353666..comments2023-05-05T02:17:58.062-07:00Comments on The Dawson Diaries: Mom moment - straddling the fenceKellyhttp://www.blogger.com/profile/16854297659644929721noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-5241268467436874661.post-47932654822323310962008-10-31T05:03:00.000-07:002008-10-31T05:03:00.000-07:00Hi Kelly, thanks for stopping by our blog. I haven...Hi Kelly, thanks for stopping by our blog. I haven't read any other left-hemi blogs, so it's been really neat to read through your blog and see how your daughter is progressing.<BR/><BR/>Our Nandi has porencephaly and is missing most of her temporal and parietal lobes (on the right side). She's doing great, but I'm afraid she's going to break a bone any day now because she has some spatial issues (trips and runs into things all the time). Schoolwise.. well she has street smarts and is really clever, but we'll see how the reading, writing, and math turn out in a few years. (She just turned 4 and has been in the U.S. for a little under a year now).<BR/><BR/>I do understand the mourning process - not so much yet with Nandini because we adopted her knowing that she had porencephaly - but with our Noah who was a healthy baby and who regressed into autism. He used to talk and play and say, "I love you, Mama" - and that's forever gone. <BR/><BR/>But we just have to pick ourselves up and deal with it don't we? And make sure we give our kids every opportunity to succeed.<BR/><BR/>Leslie :-)Recovering Noahhttps://www.blogger.com/profile/05959669295237521029noreply@blogger.comtag:blogger.com,1999:blog-5241268467436874661.post-39976130405370687562008-09-28T15:23:00.000-07:002008-09-28T15:23:00.000-07:00Hi Kelly,Thanks for your honesty in this post. I ...Hi Kelly,<BR/><BR/>Thanks for your honesty in this post. I know that we will all have days like this for the rest of our lives. It is natural, and I don't expect it to ever go away...the wondering what could have been with our special child. If it helps any, please know that we are there with you in spirit and facing the same challenges and emotions.<BR/><BR/>I guess, in reality, we all fall short in some way. All kids have some disability or another. Our kids have a very noticeable limp and some cognitive issues.<BR/><BR/>If you read the Yahoo board, it often sounds like a bowl of cherries, when in reality, it is all of us trying desperately to see the good side of things...a denial if you will.<BR/><BR/>I tell you what I saw in Blondie. I saw a very cute, outgoing, and well behaved little girl up at Johns Hopkins. She wasn't shy like so many kids are today, and her limp was almost unnoticable. The best gait out of all the kids I've met to date.<BR/><BR/>I saw a happy and healthy little girl with wide eyes and curiosity and a little girl that very few people would even recognize any special needs in. She is a miracle and no one can tell me any different.<BR/><BR/>I see you as a Mom, so dedicated to her, that you would gladly take off your left arm and give it to her. I promise, because of you, she will be the BEST that she can be.<BR/><BR/>And Yes, Blonie is an inspiration, but so are you, to all of us who are new to Holland and to many who have been here for a long time.<BR/><BR/>Again, thanks for such an honest and heartfelt post. We all feel it, but most of us are too afraid to say anything.<BR/><BR/>Keep the Faith, Hope, and Love and you can't go wrong.<BR/><BR/>CrisJessiehttps://www.blogger.com/profile/07759008917804010234noreply@blogger.com