Saturday, January 31, 2009
Happy Birthday Blondie
Tuesday, January 27, 2009
WHOOOOOOOO - check out the elbow
WHOOOOOOOO!!! Are you clapping? Are you cheering? Are tears running down your cheeks? Are you screaming, "BLONDIE, BLONDIE, BLONDIE?" I am (between coughs that is).
Monday, January 26, 2009
Water pictures from trip

Like swimming in a giant aquarium.
And then the 2nd Manatee excursion on Saturday.
Aren't they cute? No wake Florida, and quit fertilizing your yards - these mammals are spectacular.
Sunday, January 25, 2009
I almost forgot
ability of Dr. Park and Dr. Lee to give our daughter a new "normal." Manatee pt. 2


Saturday, January 24, 2009
Manatee

Sorry about the flash in this one - window glare

in the water with those things. We went to a Manatee presentation where a lady explained about the manatee rescue, and fed them. She climbed into the water with them, which was great because it showed the kids they were actually quite gentle animals. They asked a lot of fantastic questions, and were absolute EXEMPLARY in their behavior.
Tra***ta). The manatee are endangered, so the state wildlife people have set up bouys with ropes and PVC pipe that they may swim into to avoid people, but people are allowed to snorkel just outside of them. They come out to visit though because they are incredibly curious. You may swim quietly and touch with one hand if they are not sleeping on the bottom - obviously you can't chase them, or swim into the sanctuary, or feed them. Because of the cold air temperatures lately in the south, the manatee were everywhere. The problem was, that not all of our students were keen on getting in the water. The first encounter is unnerving for some. You have to get used to a wetsuit, snorkel breathing, flipping your fins, and then the fact that these 1000 pound creatures are interested in you too can overwhelm those that haven't done it before. First we get the strong, gung-ho, swimmers off the boat. Then we convince the others to get in the water. Now, I sacrificed my manatee time the first encounter to try to get as many kids in the water as I could, because lets face it, they didn't know the crew, the crew (about 6 of them) didn't know how to talk to my kids, and their parents paid some serious cash in the current economy for their child to have an amazing adventure. I managed to convince two that they could do it (the crew worked with the others). All but one got in for more than a few minutes. The cool thing about the wetsuit is that you don't have to work to float in them, so there is really only mental blocks to overcome - swimming skills are preferred, but non swimmers aren't exempt if they have courage. I must confess that I lied...um .... exaggerated many times that morning because the kids I was trying to help wanted to swim but not deal with the big mammal thing. I kept telling them they weren't around us they were "over there" in some vague spot. They believed, but I need to confess none-the-less ('cause I saw snouts coming out of the water for air). We were out there for about 2 hours, and had a great time. On the way in the fog had lifted and we saw a lot of wildlife. We did learn that this area was once fairly clear water, but due to the fertilizer run-off from lawns, the algae likes to bloom and now the water is green and murky. Tuesday, January 20, 2009
Snow storm 2009, and pushups
Sunday, January 18, 2009
Don't shoot your eye out, and pitching in
Thursday, January 15, 2009
Wednesday, January 14, 2009
Praying for another Abby
I came across this little girl while reading some of my favorite blogs from people who have adopted special needs kids or have adopted and have large families (www.buildingtheblocks.blogspot.com and recoveringnoah.blogspot.com ) These ladies are great by themselves, but one of their friends is going through a crisis. Their daughter Abby has cancer and is beginning a very yucky part of her chemo. After watching my Dad go through treatment I can't even begin to tell you how difficult it is to think about a tiny little girl trying to fight. I watched my big strong dad become a very old man through his illness. So, I am throwing a LOT of prayers over to their Abby and her crisis, and remembering that miracles do happen. If you want to drop them a line you can find Abby's family at www.riggsfamilyblog.com . I don't know this family, but they have an amazing amount of strength.
Tuesday, January 13, 2009
Quietly spiritual
I am generally a quietly spiritual person. I have a religion in which I have faith, and belief, but I don't generally speak about God to many people. I know people who have experienced the same crisis my family has faced, and then share their testimony with others through church or groups. That isn't me. I guess I have my blog to share our experiences, but I will rarely speak about God here. For me it is a private belief, a private place for me to be at peace with myself and God.
My aunt posted this video from youtube on her facebook (Thanks Liz) and I think it fits the theme we try to live as a family. We teach all of our children that they are miracles. They are not defined by their looks, or their money, or their disability or illness (they all have "issues"). Rather they are defined by their character, and their abilities to help others. This is what I try to teach my children. It was brought to my attention earlier this year when Blondie brought home a biography type assignment early in first grade. One of the questions asked, "Why are you special?" Blondie wrote that she was special because she had brain surgery. It caught me off guard because that isn't what makes her special. She has incredible perseverence, and is FUNNY as ... heck. She is generally cheerful and outgoing. Now when Cheesie had the same question for her class she said, "I am special because I am Cheesie." Same family, different perspectives. So then I really took a look at how I speak to Blondie about the type of person she is, and we continue to work on perfecting things that have nothing to do with her body or therapy. I'm glad there are people like this man out there to give us all a little reality check.
We knew several months before my Dad passed away that he wasn't responding to chemo. I was stressed, I was sad, I was angry. I happened to go to my daughter's school that day and heard from the teacher that she hadn't done her schoolwork for a few days - unacceptable. I only had to look at her to hear the excuse. She told me that it was hard to concentrate because Granddad was so sick. I erupted. Shouldn't have.... but I did. "Don't you dare use Graddad as an excuse not to do your work." I went on to rant that my father valued independence and responsibility and found great honor in work. These things were important to him. There was never an excuse not to do your best, we might fail, but we had to put forth our best work. I later recounted this conversation to Dad, and it was the first time I ever heard him cry (we were on the phone). He said, "You get it Kelly, you understand what I believe." I promised to carry on that same philosophy to my girls, which I do everyday.
I believe God may expect the same things from us as people - disabled or not. We take whatever comes our way and we move through the experience. We can't hide from it, we must participate in it - painful or joyous. We need to learn from the experience and grow as people, not wallow in the negative energy. We are all miracles, but we need to learn to be as independent as possible and responsible for ourselves. We need to help others, and find honor in working.
I'm finished rambling. Enjoy the evening.
Saturday, January 10, 2009
Simple machines
he garage. There was some serious suffering for her project because they had to go to Home Depot 3 times (all of my girls hate that store) for things they didn't buy in the first place. I was worried this would be one of those projects where the parent had to do it and the kid got the credit, but Brian had her cutting boards and using the drill, spray painting, etc. He did have to help a lot with the engineering, but I think Big Al was enthusiastic about working on it. So how does it work? You take your candy, and pour it in the hole at the top. It collects in the funnel, and when the lever is pulled it releases the candy down the inclined plane to the candy dish waiting at the bottom. 
Wednesday, January 7, 2009
Back to the regularly scheduled program
All this was being presided over by Maggie. She sleeps on our stairs, just high enough to see through the front windows and guard us from cars passing by, and those darn people who insist on exercising on her road. So if you ever pop over and need to use the stairs - be sure to skip the 4th one from the bottom, because that spot is taken.

