I remember the squish sound her head would make (like water trapped in a sponge), her head also seemed to get a little larger as the fluid moved around. It did go away, and everything is totally normal now, but it was a little unnerving at the time. These three pictures were all taken at the end of the first week.
The best advice I can give about therapy is to use tough love. I've mentioned it before, but I love Blondie and want to make her the best she can be. I have to care more than she does because she doesn't know about the future, or skills she will need. Children with this recovery process will cry and beg you not to do their exercise. They must. I played with her, scolded her, hugged her, and bribed her like you wouldn't believe. I will not be told to wait in another room. I must see what therapist are doing with her so that I can do it after therapy and in days in between therapies. I would also advise not to put limitations on children like her. Blondie is about to begin swimteam again, has her dance recital next weekend, thinks she wants to play soccer, climbs everything on a playground, and attends regular kindergarten for another 10 days. She is learning to read, and told me a lot of information today about an animal she is studying. She wants to call friends and go to their houses, and is manipulative with therapists.
We are now 3.5 years out from her surgery, and it is wonderful to say that it is not the driving, daily force that it used to be. I think about it a little because I'm always looking for ways to normalize things for her, but I have 3 other young ladies that I am raising, and disabilities will not get in our way. Brian and I are raising 4 young women who will all attend college and become whatever they want to be, they will be strong and independent and take care of themselves. They will not live at home (unless this gas thing lasts FOREVER) and they will find their own way to be an adult. We know what we want for our girls, and Blondie will meet our expectations just as the others work to meet them.
With Dr. Park on her two month checkup